The inspiration
Meet Jordy
Jordy was born in 1986 in Piqua, Ohio. He has PURA syndrome — a rare genetic condition affecting fewer than 800 known people worldwide. He has navigated seizures, surgeries, and 40 years of medical complexity. And through all of it, he has remained the most joyful person in any room — the one who reaches for your hand, who laughs from somewhere deep, who proves without trying that a life can be full in ways that have nothing to do with what you can or can't do on your own.
His parents have spent those same 40 years becoming the world's foremost experts on him. Everything they know — his full medical history, which routine settles him, what to do the moment a seizure starts — exists right now only in their heads.
A few years ago, his sister sat with their mom to talk about the future. Their mom wasn't panicked. But she was worried about the handoff — about what happens to everything she knows when she's no longer there to say it out loud. They talked about writing it all down. Someone mentioned an Excel spreadsheet, because for families like this one, that's often the best option available. There was no platform built for this.
That conversation became JORDY.care — a living record powered by AI that makes all of it searchable, shareable, and permanent. Built for Jordy. Built for every family that has ever asked the same question.
"I wanted to give my mom peace of mind. Everything she knows about Jordy — 40 years of love and learning — deserves a place that will hold it as carefully as she has."
— Michelle, Jordy's sister and founder of JORDY.care